When Your Body Becomes a Problem to Solve: Navigating Endometriosis, Medical Trauma, and Identity

 

There's a particular kind of desperate hell that comes from sitting in a doctor's office and being told, again, that nothing is wrong. Or that what you're describing can't possibly be that bad. Or that maybe it's just stress, or hormones, or your imagination.

If you've lived this, you know what I'm talking about.

I sat down with Candice Craft, a licensed marriage and family therapist in California who specializes in complex chronic illness, to talk about something that doesn't get enough attention in our field: the layered, complicated reality of living with endometriosis and adenomyosis. Candice brings both professional expertise and personal experience to her work, and what she shared felt like exactly the conversation a lot of us have been needing.

The Gaslighting Comes First

Before any real therapeutic work can happen, Candice told me there's usually one thing that has to be addressed: the medical gaslighting.

So many people walk into her office with stories that begin with "this might sound weird" or "I know this can't possibly be true." And her response is simple but, honestly, kind of revolutionary in this space: "You tell me something and I believe you."

That sentence shouldn't feel groundbreaking, but it does. Because by the time someone gets to a therapist who actually understands chronic illness, they've often:

  • Seen ten or more doctors who couldn't (or wouldn't) help

  • Been told their pain was anxiety, IBS, stress, or just "bad periods"

  • Spent significant money trying to find someone who'd take them seriously

  • Started doubting their own experience of their own body

Candice pointed out something I keep coming back to: providers inside a broken system often don't realize the impact of that system on patients. So patients arrive carrying years of accumulated dismissal, and one of the first jobs of therapy is helping them untangle that dismissal from their own narrative.

Why Endometriosis Is Especially Hard

Endometriosis and adenomyosis sit at a particularly painful intersection. Historically, women's pain has been discounted, which means research, training, and clinical awareness have lagged behind. Add in the financial barriers to seeing specialists who can actually diagnose and treat these conditions, and you have a recipe for people falling through cracks that shouldn't even exist.

Then there's the treatment piece. For years, ablation was considered the gold standard for endometriosis, but we now know excision is far more effective. Which means a lot of people have been through multiple surgeries that didn't work, and now have to find their way to one of the few excision specialists, many of whom are out of pocket.

The grief that lives in that experience is enormous.

What I Hadn't Considered

One of the things that struck me most in our conversation was Candice talking about the overlap between endometriosis and sexual trauma.

Going into surgery means trusting someone with your body while you're unconscious. For people with sexual trauma histories, that can activate responses they may not even consciously connect to surgery itself. The body just knows something feels unsafe.

This is why she does so much somatic preparation before surgery, using Brainspotting (a sister modality to EMDR) and internal family systems parts work. The goal isn't necessarily to process every trauma. Sometimes it's just to help the nervous system feel safe enough to even have the logistical conversation about scheduling the procedure.

When we go straight into problem-solving mode, we tend to skip the body. And the body stays stuck.

A black and white photo of two women in a therapy session. A woman with dark hair pulled back stands in the foreground with her eyes closed, while the other woman stands behind her supporting her head leaning slightly to the left.

The Identity Piece

Candice talked about how easy it is to lose your identity to chronic illness, especially when you're knee-deep in appointments, prescriptions, and research. There's so much to manage that "you" can disappear inside of it.

But here's what I loved about her take: integrating your diagnosis into your identity isn't a bad thing. There's a lot of content out there about not identifying with your illness, and there's a time and place for that. But the goal isn't to disown the experience. The goal is to do enough of the work that the illness doesn't have to take up all the air in the room.

When the work is done well, you don't have to talk about it as much because it's just integrated. It's part of who you are, but not all of who you are.

Candice put it this way: she wouldn't be the therapist she is without her own complex health history. We lose some capacities, and we grow new ones.

When Partners Are Involved

Candice does a lot of couples work, and she shared something that I think a lot of people need to hear: when one partner moves into a caregiver role, the other partner can start to feel like a problem to be solved instead of a person to be loved.

Her suggestion: create containers for the hard conversations. Maybe at dinner once a week, you talk about symptoms, treatment decisions, fertility, all of it. Outside that container, you intentionally find the next thing. The joy. The life that exists beyond managing the condition.

This doesn't mean you can only talk about it at prescribed times. It means everyone's nervous system gets to relax knowing there's space for it, and there's also space for everything else.

She also brought up consent, outside the sexual context. Asking your partner, "Do you have the capacity to talk about this right now?" before launching into a hard conversation. That little pause changes everything.

What I'm Sitting With

What I keep coming back to from this conversation is Candice's comment about sitting with suffering. She said she has a high tolerance for sitting in the room with things that can't be fixed, and she won't look away.

Trying to fix something that isn't fixable isn't actually helping. Sometimes the most therapeutic thing is just refusing to leave someone alone in their reality.

That's what good chronic illness work looks like.

Listen to the full conversation with Candice Craft, LMFT on the latest episode of The Chronic Illness Therapists Podcast.


Disclaimer: Everything we discuss here is just meant to be general education and information. It's not intended as personal mental health or medical advice. If you have any questions related to your unique circumstances, please contact a licensed therapist or medical professional in your state of residence.

Destiny Davis, LPC CRC, is solely responsible for the content of this article. The views expressed herein may or may not necessarily reflect the opinions of the guest.

The content in this blog post comes directly from a real, human interview between Destiny and her guest on The Chronic Illness Therapist Podcast. This written version was formatted using AI. Listen to the full episode to hear the actual conversation.


Listen to my full conversation with Candice Craft on Ep 127: When Your Body Becomes a Problem to Solve: Navigating Endometriosis, Medical Trauma, and Identity

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Listen to Candice’s interview with me, Destiny Davis, on Ep 127: When Your Body Becomes a Problem to Solve: Navigating Endometriosis, Medical Trauma, and Identity

Listen on Apple
Listen on Spotify


Candice Craft is a Licensed Marriage and Family Therapist, practicing in the state of California via telehealth. She specalizes in integrative therapeutic care for clients with complex trauma and complex chronic illness. Both professional and personal experience contributed to her deep knowledge of what life is like with chronic conditions like Lyme Disease, Long COVID, ME/CFS, PCOS and Endometriosis. Before becoming a therapist, Candice was a medical assistant and case manager for integrative physicians treating Lyme Disease and neuroimmune disease. Through this work, Candice discovered a significant gap in care and a lack of Lyme-literate and chronic illness informed psychotherapists. She aims to fill that gap, and provide affirming, somatically orientated, and medical trauma sensitive care.

Connect with Candice:
Website
Instagram


Meet Destiny - The host of The Chronic Illness Therapist Podcast and a licensed mental health therapist in the states of Georgia and Florida. Destiny offers traditional 50-minute therapy sessions as well as therapy intensives and monthly online workshops for the chronic illness community.

Destiny Davis, LPC CRC, is solely responsible for the content of this article. The views expressed herein may or may not necessarily reflect the opinions of Dr. Heather Olivier.

Destiny Davis (formerly Winters)

Destiny is a Licensed Professional Counselor and chronic illness educator.

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